On Thursday March 28, 2008 our little princess Hannah Marie turned THREE years old. This is such a milestone for her as there was a time when our prayers were that she would be able to stay alive long enough for us to take her to the temple to be sealed to us for time and all eternity. Before she was born we knew she had Down’s syndrome and Hydrocephalus. During the first few hours and days after she was born we were to find that she had three heart defects(ASD, VSD and PDA) and that they were causing her to have pulmonary hypertension thus being dependant on oxygen. We also found she was born with a rare brain malformation called Schizencephaly. She also has no middle ears, a small, blind right eye, no spleen, scoliosis, rib and vertebral anomalies, and another genetic syndrome called CHARGE. With all of this stacked against her and after six admissions to the PICU during her first four months of life, including open heart surgery and two respiratory failures she has defied the odds and expectations of several of her doctors. Not only did we make it to the Temple but she continued to improve and as you can tell from the pictures is happy and healthy.
We were told she probably would not have speech but she says loud and clear-Mom, Dada and BaBa-for Papa, Bird, Up, and she calls herself Lahlah. We were told she might have left sided CP but is very strong and is even sitting on her own and trying standing up.
Every day we celebrate her accomplishments and are so excited to celebrate birthday #3.
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